So my last chemo is a fact. I actually set up a post two days ago with all these numbers and facts. And then deleted it. I'm not really sure what to think or how I feel. That would explain my crazy internet shopping. I mean crazy over the top and not making sense kind of shopping. The last few weeks I've ordered new clothes, slippers, shoes, stack rings, bunny stationery and some other stuff I can't even remember. Just like that, out of the blue. Anything to keep me busy. It's a good thing I'm not seeing a therapist (yet).
I've also tried different things to distract me, like reading, meditation and scrap booking. But nothing seems to work. So chemo might be over but it doesn't feel like that at all. I still sit here on the couch, not feeling so great. No hair on my head. For the first time in six months I really really miss my hair. I also went outside for the first time again today. It was like a 5 minute walk and I felt like a 80 year old. I'm mostly sad and confused because of all the stuff that has happened. I have been crying a lot. I know it isn't over.
The results from the MUGA scan were pretty much the same as the echo. Which means we'll try the Herceptin again, followed by another echo. All I can hope for is that my ejection fraction will stay the same or go up a few percentages now that I'm done with chemo.
I know I will start to feel better and that I need to give it time (yes even or maybe especially the hair grow). The past six months were... well I'm not even going to try to describe them. Words won't do all the pain, suffering and fear any justice.
Showing posts with label MUGA scan. Show all posts
Showing posts with label MUGA scan. Show all posts
April 12, 2013
April 4, 2013
New colours
Oh these long haired hippie bunnies of mine are very high maintenance. But I love them. It's kind of sweet and funny taking care of their fur while I have no hair at all myself.
Now I'm exhausted. But I wanted to come here and write because after all, tomorrow is my last chemo. I still can't believe it actually. Number 8, finally.
November 9th 2012 I started with the AC treatment 4x every three weeks. February 1st 2013 I started my first Taxol/Herceptin, 4x every three weeks and I was suppose to finish on April 5th 2013.
As you could read in my previous posts, unfortunately after three treatments my ejection fraction dropped down to 53%. I did a MUGA scan last Tuesday and will have the results back next week.

So I will be finishing chemo, Taxol... but no Herceptin for me until... well until I talk to my oncologist next week.
So this is not exactly the way I was expecting to finish chemo. April 5th is a date that has been in my head since November. It's hard when things don't go as planned. I'm having a hard time letting go. I don't know what I'll do if they tell me I can't do the Herceptin at all. I really hope we're going to give it a try and that they keep monitoring me closely.
But for now let's focus on finishing that chemo chapter. It's scary. I know the story will continue. But I also hope there will be some light at the end of this chemo drug hole tunnel. It's very emotional. Because I've been through so much. Now comes the time I'm probably going to realize it.
May number 8, the last one, be gentle with me.
Now I'm exhausted. But I wanted to come here and write because after all, tomorrow is my last chemo. I still can't believe it actually. Number 8, finally.
November 9th 2012 I started with the AC treatment 4x every three weeks. February 1st 2013 I started my first Taxol/Herceptin, 4x every three weeks and I was suppose to finish on April 5th 2013.
As you could read in my previous posts, unfortunately after three treatments my ejection fraction dropped down to 53%. I did a MUGA scan last Tuesday and will have the results back next week.
So I will be finishing chemo, Taxol... but no Herceptin for me until... well until I talk to my oncologist next week.
So this is not exactly the way I was expecting to finish chemo. April 5th is a date that has been in my head since November. It's hard when things don't go as planned. I'm having a hard time letting go. I don't know what I'll do if they tell me I can't do the Herceptin at all. I really hope we're going to give it a try and that they keep monitoring me closely.
But for now let's focus on finishing that chemo chapter. It's scary. I know the story will continue. But I also hope there will be some light at the end of this chemo drug hole tunnel. It's very emotional. Because I've been through so much. Now comes the time I'm probably going to realize it.
May number 8, the last one, be gentle with me.
March 29, 2013
Being a wild bird
So looking back at my previous post it would be fair to say I had a few things on my mind that were bothering me.
So yesterday when I got out of bed I figured hey this is my life we're talking about. My heart. Let's take back control. And it felt really really good.
I decided to email my oncologist instead of waiting for him to call. That same afternoon he replied. Basically he told me he wants do a MUGA scan and until the results come back no Herceptin for me.
A MUGA scan creates video images of the ventricles (lower chambers of the heart that hold blood) to check whether they are pumping blood properly. It shows any abnormalities in the size of the ventricles and in the movement of the blood through the heart. Today the hospital called me and we scheduled the scan for next week Tuesday.
So there you have it. I feel a little more at ease and also very determined on finishing these Herceptin treatments. Which is kinda crazy of course... Because at first I was so not looking forward to them. But now I realize this treatment was prescribed for a reason and that is why it is so god damn important I finish every single one of them.
Of course if the results from the MUGA scan are seriously fucked up and the risk is too high... well then it becomes a different story. You see I don't want to die of a heart attack. That would be a bit ironic.
So yesterday when I got out of bed I figured hey this is my life we're talking about. My heart. Let's take back control. And it felt really really good.
I decided to email my oncologist instead of waiting for him to call. That same afternoon he replied. Basically he told me he wants do a MUGA scan and until the results come back no Herceptin for me.
A MUGA scan creates video images of the ventricles (lower chambers of the heart that hold blood) to check whether they are pumping blood properly. It shows any abnormalities in the size of the ventricles and in the movement of the blood through the heart. Today the hospital called me and we scheduled the scan for next week Tuesday.
So there you have it. I feel a little more at ease and also very determined on finishing these Herceptin treatments. Which is kinda crazy of course... Because at first I was so not looking forward to them. But now I realize this treatment was prescribed for a reason and that is why it is so god damn important I finish every single one of them.
Of course if the results from the MUGA scan are seriously fucked up and the risk is too high... well then it becomes a different story. You see I don't want to die of a heart attack. That would be a bit ironic.
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