Hello there, remember me?! I wanted to write another update to tell you about my progress. Because I hate blogs that aren't updated anymore and you never know what happened to that person. I just hope one day, somebody reads this and feels a little less lonely. That my words or photos will mean something to just one person. That be enough.
When I started working again last year, at the same time one of my former bosses found out he was sick. A melanoma spread to his brain and lymph nodes. I was his secretary for about 4 years. So I sent him a card and in January I wrote him a long email. He wrote me one back and was so happy to hear from me. We chatted about our treatment, hopes, distraction, loving family/friends and photography. He knew he wasn't going to get better, but there were still lights of hope. He had surgery and was going to start immunotherapy... but it wasn't meant to be. He got partly paralysed because of a cerebral hemorrhage and died at home with his wife and twins.
I really felt the need to be at his cremation. To be surrounded by people who knew him. I have been thinking about him a lot. Mostly happy memories of a secretary. The cremation was intense, sad and personal. Music was our 'thing' and we always talked a lot about concerts.. he even gave me a CD for my birthday once. So when I heard James Bay, Venice, Dotan & Coldplay... it was just perfect.
Afterwards I went up to his wife who also spoke during the cremation. What a beautiful soul! What a gorgeous strong person. It's strange how people you barely know can touch your soul like that! Wow. I told her my name and she said her husband showed her my photo series of the Chemo Chronicles. She gave me a tight tight hug.. and she said, "But look at you now, you're still here.. you're still standing strong"... and at that moment I realized what the term 'survivors guilt' really means. But don't get me wrong I'm really really glad I went. It was a powerful goodbye.
I have slowly started to cut back on the antidepressants. Well at least one of them, the ones that are making me fat and hungry. I'm still taking the Citalopram, but I kept gaining weight on the Mirtazapine. I'm a vegetarian but I felt like I could eat an entire horse every night. It really got out of hand and it made me sad, which is exactly the opposite of what its suppose to do right?! I took a 1/2 pill for 3 weeks, and now I'm on 1/4 for the second week. I have had some withdrawal symptoms but I'm determined to quit this happy-but-fatty-pill.
I have been seeing my physiotherapist twice a week. We are working on my muscles, strength, condition, balance, flexibility etc. It is hard work! He makes me sweat like a pig.
I am currently working 5 hours on three days.. and I also work a couple of hours at home. It still is a struggle.. mostly the fatigue and joint pain. But I enjoy being among colleagues. People seem generally happy to see me, I still get hugs and kisses when they see me. I started working as a project assistant for a pretty big project and that is something I have always enjoyed. I'm still not sure what is going to happen to me, because I'm reintegrating and I don't have a permanent job, I'm surplus. But I try to not to worry about that, and have faith what will meant to be will be. Also I might have to work as secretary again.. and that feels like taking a step back. Being back at work you see people with new jobs, who have developed and educated themselves. I talked about this with my psych and what matters now is I will feel better about going back to work. Finding back my confidence, a daily rhythm. I am still young and I have plenty of time to find out what it is I really want.
My company doctor. Oh my, don't get me started on this guy. He actually told me.. and I quote, "Compared to other people in your situation, I think you can't do anything." Are you fucking kidding me?! I was so pissed. I told him about how hard it was for me to look at the things I have achieved and that I am working every fucking single day to look at the positive things in my life instead of the things I have lost. I was really emotional but determined! In Dutch we say, die heb ik een poepie laten ruiken.. I kicked his ass!
So from that point on my appointments are a little more pleasant. He actually gave me a compliment last time we spoke. Ha! So always, ALWAYS stand up for yourself... but also realize you never EVER have to apologize for the way you chose to survive. Don't abandon the person you used to be.. but carry her! Be brave, be strong!
Showing posts with label psychologist. Show all posts
Showing posts with label psychologist. Show all posts
March 11, 2016
March 7, 2015
I have a thing for lists
+ I had 5 sessions of the Mindfulness training so far and it has been good! I'm so glad I took the big jump and went for it. I love the meditations techniques, the way how it's actually a lifestyle. It changes your perspective, even though it's hard and it goes very slowly. But this is something that is close to my heart. Definitely. I can recommend it. Whether you've dealt with cancer or not, depression or anxiety or stress at work.. or simply feel the need to take a deep breath. Check it out!
+ I spent a couple of afternoons at my own place. Watching TV, drinking tea, a walking meditation through the neighbourhood, rearranging my livingroom. AND I even brought the bunnies with me twice! It was so cute and emotional and it brought back so many memories. I love these sweet fur babies. Hopping through the house, finding back their old favourite spots. Next step: spending a night in my own bed. My psychiatrist told me that I still have some mourning to do, but there's only one place where I can do this and that is my home. I guess that makes sense and all. So it is not going to be easy, but eventually things will get better and I hope to feel more confident about myself.
+ I am trying to get of the couch and set new goals. So I went to the Kröller-Müller Museum with my dad and saw work of Picasso, Monet and Van Gogh! I was nervous and tired... but I did it. I also went to this children's farm/petting zoo with my parents. Hey never too old for these things. I refuse to grow up especially when I hug a goat. It was wonderful! I love animals! We also went to this beautiful protected nature area for a windy walk and it was good. Fresh air!
+ Another thing that was really important to me was visiting my friend who had just given birth to a beautiful baby girl. I was really looking forward to seeing her and her first daughter as well. So cute! So it was good talking to her and I had a lovely afternoon with lots of smiles.
+ I also had one of my favourite little visitors coming over, my colleague's son. Who is just adorable and we played on the ground and had fun.
+ I also celebrated Lola's 5th birthday. Can you believe it? Furbabies, they grow up so faaast!
- The bad stuff. I'm still struggling with my anti-depressants. I am now using a mix of Citalopram and Mirtazapine and the side effects for the last four weeks have been awful. I did lots and lots of crying. I have been feeling like crap. Emotional, vulnerable, scared. I'm meeting with my psychiatrist next week so I'm hoping it either goes better by then and otherwise we have to talk about our next step. Perhaps I need to take a break from meds because I'm so tired. But this scares me as well, because I really could use some 'help' with the big steps in recovery I still have to take. We'll see, we'll see.
+ I'd like to finish with something positive. At Mindfulness training we had to keep a list of positive things that happened during the day for a week. Because we often remember the bad stuff and neglect the good happy tiny pleasures in our life. I actually felt really good about this and decided to go on with it. I found a wonderful app called Gratitude356. Practising gratitude has been scientifically proven! You can check it out here if you're interested. Give it a try!
+ I spent a couple of afternoons at my own place. Watching TV, drinking tea, a walking meditation through the neighbourhood, rearranging my livingroom. AND I even brought the bunnies with me twice! It was so cute and emotional and it brought back so many memories. I love these sweet fur babies. Hopping through the house, finding back their old favourite spots. Next step: spending a night in my own bed. My psychiatrist told me that I still have some mourning to do, but there's only one place where I can do this and that is my home. I guess that makes sense and all. So it is not going to be easy, but eventually things will get better and I hope to feel more confident about myself.
+ I am trying to get of the couch and set new goals. So I went to the Kröller-Müller Museum with my dad and saw work of Picasso, Monet and Van Gogh! I was nervous and tired... but I did it. I also went to this children's farm/petting zoo with my parents. Hey never too old for these things. I refuse to grow up especially when I hug a goat. It was wonderful! I love animals! We also went to this beautiful protected nature area for a windy walk and it was good. Fresh air!
+ Another thing that was really important to me was visiting my friend who had just given birth to a beautiful baby girl. I was really looking forward to seeing her and her first daughter as well. So cute! So it was good talking to her and I had a lovely afternoon with lots of smiles.
+ I also had one of my favourite little visitors coming over, my colleague's son. Who is just adorable and we played on the ground and had fun.
+ I also celebrated Lola's 5th birthday. Can you believe it? Furbabies, they grow up so faaast!
- The bad stuff. I'm still struggling with my anti-depressants. I am now using a mix of Citalopram and Mirtazapine and the side effects for the last four weeks have been awful. I did lots and lots of crying. I have been feeling like crap. Emotional, vulnerable, scared. I'm meeting with my psychiatrist next week so I'm hoping it either goes better by then and otherwise we have to talk about our next step. Perhaps I need to take a break from meds because I'm so tired. But this scares me as well, because I really could use some 'help' with the big steps in recovery I still have to take. We'll see, we'll see.
+ I'd like to finish with something positive. At Mindfulness training we had to keep a list of positive things that happened during the day for a week. Because we often remember the bad stuff and neglect the good happy tiny pleasures in our life. I actually felt really good about this and decided to go on with it. I found a wonderful app called Gratitude356. Practising gratitude has been scientifically proven! You can check it out here if you're interested. Give it a try!
October 4, 2014
Changing colour
So it's been a while, Hello October. In case you were wondering, I'm ignoring Breast Cancer Awareness month. Call it denial. Whatever. I am so done with that shit.
As for the running part... that didn't go as planned. Wow nothing does go as planned did you notice?! Better all let it go and see what happens... So I ended up with some serious knee ache and decided it was better to quit for now. I cried a lot because of the quitting part yes. Because I finally had found something that made me feel normal, and not like a patient. Something that felt so good... and wow my body could handle it. Guess not. So I am not giving up on this... but for now it's back to walking. Today I walked my first 5K. It was pretty good... the music, nature, just me, myself & I... at fast pace.
I'm still experimenting with the anti-depressants. I am now on 30 mg. Because after a few weeks things were back to normal (in other words: lots of crying). But I can't really say the 30 mg is making me feel a hell of a lot better. Don't get me wrong I have good days, but it's still a struggle sometimes. I know with anti-depressants you have to give it a few weeks.. so that's what I'm going to do... and I'm meeting with my psychiatrist in a week or so.
What else, what else? I saw my radiologist which brought back lots of bad memories. Radiation treatment. The dressing room, autumn, walking through that hallway with my upper body undressed. So I try to do what my psychologist says, I let myself think about it... for a while... let it flow. Then I tell myself, you are here now, no treatment whatsoever. You're okay. And then I try to move on. Sometimes it works, sometimes it doesn't. I suppose it takes practise, but I kinda think that is the way to approach these triggers.
Next week I will have my Zoladex injection. But it's the last one this year.
I have been keeping myself pretty busy with penpalling, snail mail, mail art, mail swaps, etc, etc. I enjoy it a lot! I also have been working on Christmas postcards for my Etsy store, they are already available if you want to check them out!
I also had my second hair cut! It really is growing and my curls are sooo coming back! I also have a pair of new specs which I really love. I have started to buy some new autumn/winter clothes as well. Which feels good. Ah and I also gained some weight. Hallelujah!
As for the running part... that didn't go as planned. Wow nothing does go as planned did you notice?! Better all let it go and see what happens... So I ended up with some serious knee ache and decided it was better to quit for now. I cried a lot because of the quitting part yes. Because I finally had found something that made me feel normal, and not like a patient. Something that felt so good... and wow my body could handle it. Guess not. So I am not giving up on this... but for now it's back to walking. Today I walked my first 5K. It was pretty good... the music, nature, just me, myself & I... at fast pace.
I'm still experimenting with the anti-depressants. I am now on 30 mg. Because after a few weeks things were back to normal (in other words: lots of crying). But I can't really say the 30 mg is making me feel a hell of a lot better. Don't get me wrong I have good days, but it's still a struggle sometimes. I know with anti-depressants you have to give it a few weeks.. so that's what I'm going to do... and I'm meeting with my psychiatrist in a week or so.
What else, what else? I saw my radiologist which brought back lots of bad memories. Radiation treatment. The dressing room, autumn, walking through that hallway with my upper body undressed. So I try to do what my psychologist says, I let myself think about it... for a while... let it flow. Then I tell myself, you are here now, no treatment whatsoever. You're okay. And then I try to move on. Sometimes it works, sometimes it doesn't. I suppose it takes practise, but I kinda think that is the way to approach these triggers.
Next week I will have my Zoladex injection. But it's the last one this year.
I have been keeping myself pretty busy with penpalling, snail mail, mail art, mail swaps, etc, etc. I enjoy it a lot! I also have been working on Christmas postcards for my Etsy store, they are already available if you want to check them out!
I also had my second hair cut! It really is growing and my curls are sooo coming back! I also have a pair of new specs which I really love. I have started to buy some new autumn/winter clothes as well. Which feels good. Ah and I also gained some weight. Hallelujah!
September 4, 2014
Blue sapphire
He said, " You really are different from last time I saw you. The problems seem to have less control over you, it is more like... you have taken back control."
That's what my company doctor said. He was quite happy with my progress (remember: progress = progress no matter how small). But I took some steps, made some decisions. Here I am, voilà it's September.
So let me start with that horrible physiotherapy training. I quit. I did it, I finally decided it wasn't for me. Thanks to Ashley who reminded me there are 100 ways to climb a mountain.
The only thing it did give me was enough confidence to put on my running shoes and just go for it. Before I got sick I used this app called Get Running and I really liked it so I am using it again. You can find more information about it here. Basically it's a Couch-to-5K running plan, but I will start running twice a week instead of three. I will take it slow. Let my body get used to it. But fuck hey, I'm doing it. My first run... was very emotional. Because I was thinking of the horror my body went through... and now I was here all of a sudden... fresh air, beautiful nature, wind in my HAIR! I really cried my eyes out when I got home. It was good. A milestone I would think.
I always do some yoga stretches after my run. If you're interested, I follow exactly this routine. I try to do some other exercises for my upper body through the week, low key, whenever I feel like it. No pressure. First priority is: running. Because it is something I like and I think I really could benefit from this mentally as well.
But I made another decision after talking to my psychologist and psychiatrist... I was going to give the anti-depressants another go. So I made this long list for my psychiatrist and he was pretty cool and understanding about everything. I am still seeing my psychologist every three weeks and it's nice talking to a woman. But this dude, well he gets me. Which is good I think when somebody prescribes you medication. I have been taking it for almost a week now... I think I feel a little more calm, a little less emotional... more steady? Of course it is way too early to tell how this will work in the long run. But at least I'm not freaking out or feeling like a zombie (it happens, been there.. done that). So I think we're on the right track with this as well. Which made me cry as well. Weird eh? I have been feeling so much pain and heartache... now I finally get a little bit of fresh air... As if I'm taking a deep breath... and I cried because I didn't have to cry.
So all and all that sounds pretty good and uplifting doesn't it? I don't expect miracles all of a sudden.. but at least there's improvement. I expect more bad days, but I know the sun will shine as well!
That's what my company doctor said. He was quite happy with my progress (remember: progress = progress no matter how small). But I took some steps, made some decisions. Here I am, voilà it's September.
So let me start with that horrible physiotherapy training. I quit. I did it, I finally decided it wasn't for me. Thanks to Ashley who reminded me there are 100 ways to climb a mountain.
The only thing it did give me was enough confidence to put on my running shoes and just go for it. Before I got sick I used this app called Get Running and I really liked it so I am using it again. You can find more information about it here. Basically it's a Couch-to-5K running plan, but I will start running twice a week instead of three. I will take it slow. Let my body get used to it. But fuck hey, I'm doing it. My first run... was very emotional. Because I was thinking of the horror my body went through... and now I was here all of a sudden... fresh air, beautiful nature, wind in my HAIR! I really cried my eyes out when I got home. It was good. A milestone I would think.
I always do some yoga stretches after my run. If you're interested, I follow exactly this routine. I try to do some other exercises for my upper body through the week, low key, whenever I feel like it. No pressure. First priority is: running. Because it is something I like and I think I really could benefit from this mentally as well.
But I made another decision after talking to my psychologist and psychiatrist... I was going to give the anti-depressants another go. So I made this long list for my psychiatrist and he was pretty cool and understanding about everything. I am still seeing my psychologist every three weeks and it's nice talking to a woman. But this dude, well he gets me. Which is good I think when somebody prescribes you medication. I have been taking it for almost a week now... I think I feel a little more calm, a little less emotional... more steady? Of course it is way too early to tell how this will work in the long run. But at least I'm not freaking out or feeling like a zombie (it happens, been there.. done that). So I think we're on the right track with this as well. Which made me cry as well. Weird eh? I have been feeling so much pain and heartache... now I finally get a little bit of fresh air... As if I'm taking a deep breath... and I cried because I didn't have to cry.
So all and all that sounds pretty good and uplifting doesn't it? I don't expect miracles all of a sudden.. but at least there's improvement. I expect more bad days, but I know the sun will shine as well!
July 8, 2014
Because there is still good stuff
July. Wow. What has happened to the concept of time? Crazy.
So I talked to my psych again today. It was a good one. I think. She complimented me on the small steps I have been taking over the last couple of weeks. Which felt really good. I really need inspiring, encouraging people in my life right now. I know I have to find back my confidence, and I have to do it myself. But sometimes these little things can set your mood. They can change your day and turn it into a better one.
So I told her I finally understand that I am depressed. I also told her I want to talk to the psychologist after his vacation about medication. I haven't said yes to the meds yet, but a conversation wouldn't hurt anyone.
So I still have my bad days and I feel lots of sadness inside of me. But here's a list of my little projects that might not mean much to you but for me are big steps into the right direction:
-I bought a ladder book case for my house. I have collected so much stuff and now I finally have a place to display everything! Although I still live with my parents it feels good knowing one day I'll be back on my own. When I'm ready.
-I bought an Ikea Moppe cabinet and turned it into a 'Pimp Moppe' project. I decorated the drawers with cute flower paper.
-I bough this simple pin board and turned it into a card holder/memory board. It looks so pretty and nice and I'm in love with it.
-I did start my 'One Line A Day' journal on the first of July. A few lines before I go to sleep. Empty the head.
-I have been working really hard on my Etsy store and I was able to sent off packages to England, Germany, France and The Netherlands. So proud of this!
-I love working on my Wreck This Journal, it so much fun and a great distraction!
-I finally made an appointment at the dentist! I have been putting it off for so long.
-I love drawing and painting in my art journal. Okay I think I basically like all kinds of craft. Could that be possible?
-Snuggling with the baby bunnies!
-Postcrossing, snailmail, penpals... a filled mailbox makes me happy as well!
-I love nature, taking a walk... I love the green, summer, the pond with duckies.
-I was so against it, but now I really love my Kobo e-reader. It is such a nifty little 'book'.
-Thrifting! I love finding treasures! Whether it's vinyl or a cute porcelain little bunny.
-Instagram addict. 'Nuff said.
So I talked to my psych again today. It was a good one. I think. She complimented me on the small steps I have been taking over the last couple of weeks. Which felt really good. I really need inspiring, encouraging people in my life right now. I know I have to find back my confidence, and I have to do it myself. But sometimes these little things can set your mood. They can change your day and turn it into a better one.
So I told her I finally understand that I am depressed. I also told her I want to talk to the psychologist after his vacation about medication. I haven't said yes to the meds yet, but a conversation wouldn't hurt anyone.
So I still have my bad days and I feel lots of sadness inside of me. But here's a list of my little projects that might not mean much to you but for me are big steps into the right direction:
-I bought a ladder book case for my house. I have collected so much stuff and now I finally have a place to display everything! Although I still live with my parents it feels good knowing one day I'll be back on my own. When I'm ready.
-I bought an Ikea Moppe cabinet and turned it into a 'Pimp Moppe' project. I decorated the drawers with cute flower paper.
-I bough this simple pin board and turned it into a card holder/memory board. It looks so pretty and nice and I'm in love with it.
-I did start my 'One Line A Day' journal on the first of July. A few lines before I go to sleep. Empty the head.
-I have been working really hard on my Etsy store and I was able to sent off packages to England, Germany, France and The Netherlands. So proud of this!
-I love working on my Wreck This Journal, it so much fun and a great distraction!
-I finally made an appointment at the dentist! I have been putting it off for so long.
-I love drawing and painting in my art journal. Okay I think I basically like all kinds of craft. Could that be possible?
-Snuggling with the baby bunnies!
-Postcrossing, snailmail, penpals... a filled mailbox makes me happy as well!
-I love nature, taking a walk... I love the green, summer, the pond with duckies.
-I was so against it, but now I really love my Kobo e-reader. It is such a nifty little 'book'.
-Thrifting! I love finding treasures! Whether it's vinyl or a cute porcelain little bunny.
-Instagram addict. 'Nuff said.
May 28, 2014
Wreck this
It seems to be the month of tough conversations.
So after I let everything sunk in from my appointment with the insurance doctor at the UVW... I received his report. It is so freakin' hard to read what people write about your emotional well-being. Especially when our conversation didn't last any longer than 15 minutes and I still get mad when I think about the pain his words caused me. But guess what his report wasn't so bad! He got the point pretty much right. The essence of my story and why I am not working right now.
So today I talked to the employment specialist and I wasn't sure whether or not I was going to bring up the insurance doctor or not. But we got to talk about the report pretty soon and so I simply told him everything. That it caused me a lot of pain and that I felt I was treated badly. That you don't deal with people this way. He knew this doctor pretty well and we had a good conversation. Which was such a relieve. I have to wait for there final decision, but if everything goes right I'm just going to leave it at that. At work they wanted me to file a complaint but I don't think I want to. It will cost me too much energy. The report was pretty much okay. My appointment with the employment specialist made me feel better. Hey we even got to talk about bunnies! So sometimes you have to let things go. All I want is other people to understand why I am not working at this moment and the safety net that is out there to catch me. Because I have fallen. From high.
On Monday I talked to my psychologist. Not a great conversation either because... yes here it comes... she told me that my cancer diagnoses hit me hard.. perhaps harder than it would hit other people. Seriously WHAT THE FUCK?! Do we not learn that you can not compare yourself to other people? And that grief can not be compared to grief? I was and still am very upset about her remark. I lived my own personal horror story! I don't know what she meant by it. There might be some truth in there, but it sure as hell isn't doing me any good. Which sucks, because so far, no matter how painful they are, our conversations were always pretty good. I definitely have to ask her about this next time because it's been bothering me for a while now.
She actually also wanted me to be on anti-depressants again but I refused. I hate it how I let things become so big and then they just blow up in my head. Not good. I am fragile and emotional YES! I cry ALL the time. But never do I want to feel again like I was on anti-depressants. I know they weren't they right ones for me... but I don't think a pill is going to solve everything. I have to find my way through this. Grief, cry, mourn, scream... whatever. But at least they are real feelings. They are me.
Next week I have my mammogram. As you can guess I'm absolutely crazy nervous about this.
So after I let everything sunk in from my appointment with the insurance doctor at the UVW... I received his report. It is so freakin' hard to read what people write about your emotional well-being. Especially when our conversation didn't last any longer than 15 minutes and I still get mad when I think about the pain his words caused me. But guess what his report wasn't so bad! He got the point pretty much right. The essence of my story and why I am not working right now.
So today I talked to the employment specialist and I wasn't sure whether or not I was going to bring up the insurance doctor or not. But we got to talk about the report pretty soon and so I simply told him everything. That it caused me a lot of pain and that I felt I was treated badly. That you don't deal with people this way. He knew this doctor pretty well and we had a good conversation. Which was such a relieve. I have to wait for there final decision, but if everything goes right I'm just going to leave it at that. At work they wanted me to file a complaint but I don't think I want to. It will cost me too much energy. The report was pretty much okay. My appointment with the employment specialist made me feel better. Hey we even got to talk about bunnies! So sometimes you have to let things go. All I want is other people to understand why I am not working at this moment and the safety net that is out there to catch me. Because I have fallen. From high.
On Monday I talked to my psychologist. Not a great conversation either because... yes here it comes... she told me that my cancer diagnoses hit me hard.. perhaps harder than it would hit other people. Seriously WHAT THE FUCK?! Do we not learn that you can not compare yourself to other people? And that grief can not be compared to grief? I was and still am very upset about her remark. I lived my own personal horror story! I don't know what she meant by it. There might be some truth in there, but it sure as hell isn't doing me any good. Which sucks, because so far, no matter how painful they are, our conversations were always pretty good. I definitely have to ask her about this next time because it's been bothering me for a while now.
She actually also wanted me to be on anti-depressants again but I refused. I hate it how I let things become so big and then they just blow up in my head. Not good. I am fragile and emotional YES! I cry ALL the time. But never do I want to feel again like I was on anti-depressants. I know they weren't they right ones for me... but I don't think a pill is going to solve everything. I have to find my way through this. Grief, cry, mourn, scream... whatever. But at least they are real feelings. They are me.
Next week I have my mammogram. As you can guess I'm absolutely crazy nervous about this.
December 19, 2013
The last 2 KM
So after my adventure with the Fluvoxamine anti-depressants and talking to my psychiatrist I (we) decided to try something else. Something just for my anxiety called Pipamperon. Now you have to know I love watching The Walking Dead but actually turning into a zombie now that's a complete different story. It did exactly the opposite as the Fluvoxamine did. I do have to admit it helped with my anxiety but other than that it was horrible. I felt no joy any more. I couldn't even have a normal conversation with my parents! They said I had no facial expression. I couldn't sleep, constant head aches and I was trembling on the inside but looked numb on the outside. So freaky weird.
So for now... no more drugs.
I seriously was about to quit the last two Herceptin, that's how bad I felt. A dead battery; no energy left. But now that I quit those damn pills, okay I'm still nervous as hell... but I do feel better. I feel like myself again. I started painting in my art journal and I enjoy taking walks. Although I don't feel festive and I will be so happy when the Holidays are over... I think I need to finish this treatment even if it's a struggle.
I talked to my psychologist today. She said, "You're not going to quit 2 KM before the finish line right?"
So tomorrow is my birthday, I am turning 32. I am trying not to think about this year too much. I read somewhere, "Don't look back because you're not going into that direction", and it seems very fitting.
I think I will start my New Year in February instead of January. It will be something different for a change.
So for now... no more drugs.
I seriously was about to quit the last two Herceptin, that's how bad I felt. A dead battery; no energy left. But now that I quit those damn pills, okay I'm still nervous as hell... but I do feel better. I feel like myself again. I started painting in my art journal and I enjoy taking walks. Although I don't feel festive and I will be so happy when the Holidays are over... I think I need to finish this treatment even if it's a struggle.
I talked to my psychologist today. She said, "You're not going to quit 2 KM before the finish line right?"
So tomorrow is my birthday, I am turning 32. I am trying not to think about this year too much. I read somewhere, "Don't look back because you're not going into that direction", and it seems very fitting.
I think I will start my New Year in February instead of January. It will be something different for a change.
Happy Holidays to my dear readers!
Some days there won't be a song in your heart... SING ANYWAY!
November 15, 2013
Just an ordinary week
MONDAY
I saw my psychologist. For some reason I feel our conversations are getting harder for me. Perhaps because she is getting to know me. Our discussions are intense and confronting. My head is a mess when I leave her office. I try to be completely open though, and tell her what is on my mind. Even though it hurts so much. "I don't know whether it's my soul or my heart", I told her, "but it physically hurts." It's oh so heavy. There's a circle of darkness and it needs to be broken.
TUESDAY
I found out my appointment with my psychiatrist wasn't scheduled for Friday like I thought it was. He called me later that day and told me it was his fault and we made a new appointment. Fortunately he still had some time left on Friday.
WEDNESDAY
Visiting my oncologist is always a big deal. I prepare myself very well with a list of questions. He told me that he's a bit worried about me starting the Tamoxifen with the state of mind I am currently in. Because it causes depression. So we agreed to wait until I finish my Herceptin in January and we will meet again in February to see how I am doing. I am actually feeling quite relieved about that. Even though he told me I am not an average patient and sometimes you have to mix up the protocols a bit to make it work. He also told me I should be so proud of myself I finished chemo. Herceptin, only four left. It should make a stronger person.
I am always so happy to undress for him ha! Does that sound weird?! I think if you're a bc cancer patient you'll understand. He checks my breasts and lymph nodes and everything looked fine. I am always incredibly relieved after that. He asked me whether I checked myself. I told him I did, but the one where I've had surgery on just feels weird and I never know what to think of it.
He also told my mother I was a bit of 'special' one. He obviously thinks I'm a bit different than his other patients I am not sure why. It must be because of the photography and the art I think. He's probably also amused by the fact I do so much research on the internet.
So then my mother came up with the idea to do another blood test and my onc agreed. Wonderful. So off we went. In the waiting room I told her that my onc asked me whether or not I checked my breasts. But it was a bit loud in there and she didn't understand what I was saying. Next to me was this huuuuge bald guy so I whispered again; "He asked me whether or not I checked my breasts". My mum still did not understand so I got annoyed and all of a sudden yelled, "HE ASKED IF I CHECK MY BOOBIES!" The big bald guy started laughing and his face turned all red. It was so aaawkward.
THURSDAY
So you guys know I started taking calcium because of the whole osteoporosis thing I mentioned a few posts ago.Well apparently calcium has side effects too because I was having diarhoea and cramps for a week now. I called with the nurse and she told me to stop taking them for a while and she will call me back in three weeks. We can either lower the dose or perhaps start taking them every other day. Are you fucking seriously?! Is there any medication out there WITHOUT side effects?! I am so god damn tired of this shit.
FRIDAY
To end the week I had another appointment with my psychiatrist to talk about anti-depressants. I did some research in advance, even talked to my own pharmacist. Eventually we both came up with the same name. It's an anti-depressant that, once I start taking Tamoxifen, won't mess with it. Complicated stuff. I will start with 25mg this week and will double my dose next week. I am so scared. Scared of yes, side effects. But it's worth the try. So please keep you fingers crossed for me this thing is going to work without too much trouble. Because I've had it with everything. Please let this be my happy pill. No seriously, just some peace, some breathing... breaking that damn circle.
I saw my psychologist. For some reason I feel our conversations are getting harder for me. Perhaps because she is getting to know me. Our discussions are intense and confronting. My head is a mess when I leave her office. I try to be completely open though, and tell her what is on my mind. Even though it hurts so much. "I don't know whether it's my soul or my heart", I told her, "but it physically hurts." It's oh so heavy. There's a circle of darkness and it needs to be broken.
TUESDAY
I found out my appointment with my psychiatrist wasn't scheduled for Friday like I thought it was. He called me later that day and told me it was his fault and we made a new appointment. Fortunately he still had some time left on Friday.
WEDNESDAY
Visiting my oncologist is always a big deal. I prepare myself very well with a list of questions. He told me that he's a bit worried about me starting the Tamoxifen with the state of mind I am currently in. Because it causes depression. So we agreed to wait until I finish my Herceptin in January and we will meet again in February to see how I am doing. I am actually feeling quite relieved about that. Even though he told me I am not an average patient and sometimes you have to mix up the protocols a bit to make it work. He also told me I should be so proud of myself I finished chemo. Herceptin, only four left. It should make a stronger person.
I am always so happy to undress for him ha! Does that sound weird?! I think if you're a bc cancer patient you'll understand. He checks my breasts and lymph nodes and everything looked fine. I am always incredibly relieved after that. He asked me whether I checked myself. I told him I did, but the one where I've had surgery on just feels weird and I never know what to think of it.
He also told my mother I was a bit of 'special' one. He obviously thinks I'm a bit different than his other patients I am not sure why. It must be because of the photography and the art I think. He's probably also amused by the fact I do so much research on the internet.
So then my mother came up with the idea to do another blood test and my onc agreed. Wonderful. So off we went. In the waiting room I told her that my onc asked me whether or not I checked my breasts. But it was a bit loud in there and she didn't understand what I was saying. Next to me was this huuuuge bald guy so I whispered again; "He asked me whether or not I checked my breasts". My mum still did not understand so I got annoyed and all of a sudden yelled, "HE ASKED IF I CHECK MY BOOBIES!" The big bald guy started laughing and his face turned all red. It was so aaawkward.
THURSDAY
So you guys know I started taking calcium because of the whole osteoporosis thing I mentioned a few posts ago.Well apparently calcium has side effects too because I was having diarhoea and cramps for a week now. I called with the nurse and she told me to stop taking them for a while and she will call me back in three weeks. We can either lower the dose or perhaps start taking them every other day. Are you fucking seriously?! Is there any medication out there WITHOUT side effects?! I am so god damn tired of this shit.
FRIDAY
To end the week I had another appointment with my psychiatrist to talk about anti-depressants. I did some research in advance, even talked to my own pharmacist. Eventually we both came up with the same name. It's an anti-depressant that, once I start taking Tamoxifen, won't mess with it. Complicated stuff. I will start with 25mg this week and will double my dose next week. I am so scared. Scared of yes, side effects. But it's worth the try. So please keep you fingers crossed for me this thing is going to work without too much trouble. Because I've had it with everything. Please let this be my happy pill. No seriously, just some peace, some breathing... breaking that damn circle.
October 6, 2013
Autumn blanket
I was doing okay for a while. But then it comes back like a blanket. Now I just want to hide underneath there. Makes me wonder if I really am depressed.
I try. I try so hard. But every morning is a struggle. Getting up is the hardest part of the day. Taking it day by day. Step by step. I've never felt so tired before. Physical and emotional. Trying to keep it all together. Like I said I want to hide underneath my blanket and have somebody wake me up when it's February. No more Herceptin.
I seek distraction. I go grocery shopping. I take walks. I snuggle with my bunnies. I sometimes take photos. I focus on my art. I visit work. The last time I was there it didn't go so well though. There were only a few people I do not really care for. At some point I was talking in the hallway to 5 or 6 people and then this one girl showed up that, well let's just say is not a fave colleague of mine. If we used to run in each other during our break we never even said 'hello'. But now... she stood there next to me listening and asking questions. And I was thinking to myself, 'what the fuck are you doing here?!' I just felt like her interest in me wasn't sincere. I was just a story to her. An interesting break from her work or something like that.
It really is hard to get excited or to look forward to something. My art journal has become important to me. I usually draw/paint something after I talk to my psych as well. It has become an important way for me to express myself. I like talking to my psych even though it's very emotional and hard. When I come home I'm usually not a 'happy' person. It's confronting, it goes deep. But I guess it's all part of the recovery process.
I'm kinda sick and tired of October Awareness month as well. It's too confronting right now. I can't take it. I try to close my eyes for everything out there but it almost seems impossible. It's pink in your face. There's a part of me that wants to read everything and I feel that I have to know everything about my disease. But then again, a big part of me wants to block it. Because it's too painful.
There was one thing that really spoke out to me though. The Dutch website for young women with breast cancer asked people younger than 35 to write a one time blog about what it is like to be diagnosed at such young age. So I wrote my story down in 800 words and it was published on their website this week. Writing my story down in my mother tongue was very confronting for me. The story and how it all pretty much began, kept going through my head for a couple of days. But I'm proud of it anyway. I got some really great responses and people could identify to it.
Because my bunnies are one of the few things that still make me smile here are some cute fluffy pictures I took for World Animal day.
I try. I try so hard. But every morning is a struggle. Getting up is the hardest part of the day. Taking it day by day. Step by step. I've never felt so tired before. Physical and emotional. Trying to keep it all together. Like I said I want to hide underneath my blanket and have somebody wake me up when it's February. No more Herceptin.
I seek distraction. I go grocery shopping. I take walks. I snuggle with my bunnies. I sometimes take photos. I focus on my art. I visit work. The last time I was there it didn't go so well though. There were only a few people I do not really care for. At some point I was talking in the hallway to 5 or 6 people and then this one girl showed up that, well let's just say is not a fave colleague of mine. If we used to run in each other during our break we never even said 'hello'. But now... she stood there next to me listening and asking questions. And I was thinking to myself, 'what the fuck are you doing here?!' I just felt like her interest in me wasn't sincere. I was just a story to her. An interesting break from her work or something like that.
It really is hard to get excited or to look forward to something. My art journal has become important to me. I usually draw/paint something after I talk to my psych as well. It has become an important way for me to express myself. I like talking to my psych even though it's very emotional and hard. When I come home I'm usually not a 'happy' person. It's confronting, it goes deep. But I guess it's all part of the recovery process.
I'm kinda sick and tired of October Awareness month as well. It's too confronting right now. I can't take it. I try to close my eyes for everything out there but it almost seems impossible. It's pink in your face. There's a part of me that wants to read everything and I feel that I have to know everything about my disease. But then again, a big part of me wants to block it. Because it's too painful.
There was one thing that really spoke out to me though. The Dutch website for young women with breast cancer asked people younger than 35 to write a one time blog about what it is like to be diagnosed at such young age. So I wrote my story down in 800 words and it was published on their website this week. Writing my story down in my mother tongue was very confronting for me. The story and how it all pretty much began, kept going through my head for a couple of days. But I'm proud of it anyway. I got some really great responses and people could identify to it.
Because my bunnies are one of the few things that still make me smile here are some cute fluffy pictures I took for World Animal day.
September 16, 2013
Up
I talked to my psych again. She wanted me to tell about the person I was before I got cancer. Which was hard. Because it reminded me of my old life. Little old me. The curly care free silly dreamer that turned into a neurotic sad little bird.
I told her I believe I'm not depressed, during our previous appointments, that I am just sad and anxious. But today she sort of made me think maybe I am. When I came home it was quite a shock to me. I hate labels. But I suppose it doesn't really matter whatever the fuck I'm calling it. It is what it is. I feel what I feel. I already came a long way accepting my feelings and I firmly believe positivity will not save you. I hate to break it to you but in my opinion it's true. You have to accept your negative feelings, make room for them and listen to them. Give them a voice as well so they don't become a silent panic within you.
I started an art journal which feels really good. It's mixed media, so I draw, paint, scrap book etc. etc. It feels good to have another outlet next to photography and writing. I also became a member of postcrossing. Which is a postcard exchange project that invites everyone to send and receive postcards from random places in the world. So I'm really trying to seek distraction.
So accept all of your feelings but also make sure there's a spark. Things that will make you happy. I know 'happy' is a word that some days do not apply. But try. Really try to find things close to you. Think of picking up a new hobby, or blow life into an old project. Because you need that strength, that energy, to keep going and going. We can't quit. We can't give up now. Up we go.
P.s. My hair diary is updated.
I told her I believe I'm not depressed, during our previous appointments, that I am just sad and anxious. But today she sort of made me think maybe I am. When I came home it was quite a shock to me. I hate labels. But I suppose it doesn't really matter whatever the fuck I'm calling it. It is what it is. I feel what I feel. I already came a long way accepting my feelings and I firmly believe positivity will not save you. I hate to break it to you but in my opinion it's true. You have to accept your negative feelings, make room for them and listen to them. Give them a voice as well so they don't become a silent panic within you.
I started an art journal which feels really good. It's mixed media, so I draw, paint, scrap book etc. etc. It feels good to have another outlet next to photography and writing. I also became a member of postcrossing. Which is a postcard exchange project that invites everyone to send and receive postcards from random places in the world. So I'm really trying to seek distraction.
So accept all of your feelings but also make sure there's a spark. Things that will make you happy. I know 'happy' is a word that some days do not apply. But try. Really try to find things close to you. Think of picking up a new hobby, or blow life into an old project. Because you need that strength, that energy, to keep going and going. We can't quit. We can't give up now. Up we go.
P.s. My hair diary is updated.
September 6, 2013
Beast of burden
I'm exhausted. I spent the afternoon at the hospital yesterday. Today I had to see my radiologist. In other words; another trip to my favourite place in the whole wide world.
These appointments are still hard for me. They make me feel so sad. You think you would get used to it, but really you don't. Because #1 they are confronting you with your disease. And #2 there's always something new around the corner.
I spoke with a nurse about Osteoporosis because it runs in my family. My test results from the Dexa scan weren't that upsetting but it's very likely I will develop Osteoporosis later on in life (a lot of people do). So in order for them to make a plan and keep monitoring me I had to do more blood tests. Best of all, I get to do a 24 hour urine test. Really. I have to collect all of my pee for 24 hours. Sigh. Really makes you wonder where it will end?
All these appointments and tests are such a heavy burden. It's so hard to forget and just continue your day. I can't do that. Which brings me to my psych. I talked to her again and time fly by this time. Which is a good sign I suppose. I can also officially say, I think she's a good match for me now. She understands me. My character. She gets it.
I don't know if I mentioned this, but I currently use Lorazepam for my anxiety and she wants me to talk to a psychiatrist about different options of medications. I have very mixed feelings about using an anti-depressant but then again... if it could make my life just a little easier right now. It seems worth checking into.
We talked about being in the now. Which is very important for me because I'm struggling so much with the Herceptin and everything else (all the bears). We also talked (I cried like a baby) about chemo. I told her about my photography and how I feel it got me through chemo. She was very curious so I gave her my card and she said she would take a look at my work. I hope we get to talk about it next time.
She told me that photography got me through rough times. The hardest part is over. I have to find my strength back. Things that inspire me, that give me back my drive. Things that make you forget the C-word for a while. Block those thoughts (and no there's no button). I have to start the count down on the Herceptin. I have to promise myself fun stuff, I need things to look forward to. So I will be able to finish this chapter of my treatment as well.
These appointments are still hard for me. They make me feel so sad. You think you would get used to it, but really you don't. Because #1 they are confronting you with your disease. And #2 there's always something new around the corner.
I spoke with a nurse about Osteoporosis because it runs in my family. My test results from the Dexa scan weren't that upsetting but it's very likely I will develop Osteoporosis later on in life (a lot of people do). So in order for them to make a plan and keep monitoring me I had to do more blood tests. Best of all, I get to do a 24 hour urine test. Really. I have to collect all of my pee for 24 hours. Sigh. Really makes you wonder where it will end?
All these appointments and tests are such a heavy burden. It's so hard to forget and just continue your day. I can't do that. Which brings me to my psych. I talked to her again and time fly by this time. Which is a good sign I suppose. I can also officially say, I think she's a good match for me now. She understands me. My character. She gets it.
I don't know if I mentioned this, but I currently use Lorazepam for my anxiety and she wants me to talk to a psychiatrist about different options of medications. I have very mixed feelings about using an anti-depressant but then again... if it could make my life just a little easier right now. It seems worth checking into.
We talked about being in the now. Which is very important for me because I'm struggling so much with the Herceptin and everything else (all the bears). We also talked (I cried like a baby) about chemo. I told her about my photography and how I feel it got me through chemo. She was very curious so I gave her my card and she said she would take a look at my work. I hope we get to talk about it next time.
She told me that photography got me through rough times. The hardest part is over. I have to find my strength back. Things that inspire me, that give me back my drive. Things that make you forget the C-word for a while. Block those thoughts (and no there's no button). I have to start the count down on the Herceptin. I have to promise myself fun stuff, I need things to look forward to. So I will be able to finish this chapter of my treatment as well.
August 19, 2013
The one with the shrink
After I made the decision it was time for me to see a psychologist I had some visions of what that would be like. Yes most of them were influenced and inspired by TV and movies.
Big white offices. Interesting art. Gigantic comfortable sofas. Big tissue box on the table.
So I was a little surprised when I met my psychologist and she took me to this broom closet; big enough to fit a desk, two comfortable chairs and a small table. A boring framed beach photo. It was a little dark as well. No tissue box WTF?! But it is going to be my safe haven. The place where I can say anything, cry, scream and laugh without being judged.
That's exactly how it felt. She seemed nice, understanding, interested and at the same time she wasn't judging me. It was just our first meeting, but I didn't expect to tell her so much already. Basically we discussed what happened in my life after being diagnosed. WAY too much material to talk about when you have 50 minutes. But I think I gave her a pretty good sketch of my life right now, the girl I used to be and that I'm a little lost and sad right now.
I don't know what's gonna come from this. I don't expect miracles. But I'm hoping for some guidance, so I'll be able to finish my Herceptin. But I also think just talking to a stranger who doesn't know me at all... is a good thing. Because talking about it is so hard. Let's face it, we all have thoughts we don't share with anyone. So to be able to share them with someone without being judged must relieve some of the tension. Maybe, maybe she'll be able to help me a little bit more in the long run when I'm ready to pick up some of the pieces.We'll see how it goes.
Updated my hair diary.
Big white offices. Interesting art. Gigantic comfortable sofas. Big tissue box on the table.
So I was a little surprised when I met my psychologist and she took me to this broom closet; big enough to fit a desk, two comfortable chairs and a small table. A boring framed beach photo. It was a little dark as well. No tissue box WTF?! But it is going to be my safe haven. The place where I can say anything, cry, scream and laugh without being judged.
That's exactly how it felt. She seemed nice, understanding, interested and at the same time she wasn't judging me. It was just our first meeting, but I didn't expect to tell her so much already. Basically we discussed what happened in my life after being diagnosed. WAY too much material to talk about when you have 50 minutes. But I think I gave her a pretty good sketch of my life right now, the girl I used to be and that I'm a little lost and sad right now.
I don't know what's gonna come from this. I don't expect miracles. But I'm hoping for some guidance, so I'll be able to finish my Herceptin. But I also think just talking to a stranger who doesn't know me at all... is a good thing. Because talking about it is so hard. Let's face it, we all have thoughts we don't share with anyone. So to be able to share them with someone without being judged must relieve some of the tension. Maybe, maybe she'll be able to help me a little bit more in the long run when I'm ready to pick up some of the pieces.We'll see how it goes.
Updated my hair diary.
August 14, 2013
Here comes crazy
Exactly one year ago I had my surgery, a lumpectomy. I try not to think about it too much. What's the point?!
I'm here now.
A long road it was and still is. I think that is the hardest part. The part that other people will never understand. That cancer is always on my mind these days. Finding distraction is so hard. After a year of treatment I feel like I have barely any strength/energy left. I still have to do six months of Herceptin. And it's Her-crap-tin.
There's so many small things, it's too much. Little things. A normal person wouldn't even bother to give it even one thought. But after a year on this crazy roller coaster I can cry over almost anything now. The Tamoxifen I haven't started and I'm so scared about the side effects. All the Herceptin I still have to do. Telling my story. Answering questions. It's hard to say it out loud, "I'm not doing so good right now." The side effects from chemo and radiation therapy. Confrontations. My hair which of course isn't growing as fast as I want to. Losing a nail. You name it. I cry about it.
So I have some news, I'm finally going to see a psych! I will have my first appointment on Monday. Really nervous. But then again, if you can name one thing I'm not nervous about these days I'll applaud you.
Also wanted to thank those that found my blog and emailed me. I'm sorry I haven't taken the time to respond personally but it's just so hard. Sometimes I just don't know what to say... but do know I appreciate every single email.
I'm here now.
A long road it was and still is. I think that is the hardest part. The part that other people will never understand. That cancer is always on my mind these days. Finding distraction is so hard. After a year of treatment I feel like I have barely any strength/energy left. I still have to do six months of Herceptin. And it's Her-crap-tin.
There's so many small things, it's too much. Little things. A normal person wouldn't even bother to give it even one thought. But after a year on this crazy roller coaster I can cry over almost anything now. The Tamoxifen I haven't started and I'm so scared about the side effects. All the Herceptin I still have to do. Telling my story. Answering questions. It's hard to say it out loud, "I'm not doing so good right now." The side effects from chemo and radiation therapy. Confrontations. My hair which of course isn't growing as fast as I want to. Losing a nail. You name it. I cry about it.
So I have some news, I'm finally going to see a psych! I will have my first appointment on Monday. Really nervous. But then again, if you can name one thing I'm not nervous about these days I'll applaud you.
Also wanted to thank those that found my blog and emailed me. I'm sorry I haven't taken the time to respond personally but it's just so hard. Sometimes I just don't know what to say... but do know I appreciate every single email.
August 1, 2013
Being brave
I talked to my onc last Thursday. Made a list with things I wanted to talk about before I went. I spent like 45 minutes in his office. He is wonderful for taking the time like that. How important is it to have a good relationship with your doctor. Seriously. I trust this man. I sit there sobbing in his office but he's still able to make me laugh.
So we talked a lot. About everything. He convinced me I'm completely normal. He also complimented me on coming to him asking for help. So he's going to search for a psychologist for me... According to him there needs to be a certain chemistry between a patient and a pshych so he's going to try and find me a good match.
Tamoxifen also came up. But since I'm not feeling so great right now... and Tamoxifen has like a billion side effects and depression is one of them. My onc decided he wants me to see a psych first and feel better. Which is quite a relieve actually. I have enough on my plate for now. The results from the blood test showed that I haven't hit menopause yet... but it's coming close.
In the meantime I'm working very hard on the being the in now and not thinking about my next Herceptin treatment. One word: DISTRACTION. I sand and paint old furniture, I draw, make cards, send out packages, take photos, I take walks, hug the bunnies, I bought a record player... that sort of things.
Today I had my first walk outside without my hat. My hair is still really short but it's too hot for a hat right now. I think it'll look better in one or two months. Maybe I can even dye it by then and get rid off the grey hairs.
I also donated 50 of my photos for Ann Marie's Bravery Bags. She's making bags filled with goodies to lift spirits of those fighting the C - battle as well. My photos feature strong and inspiring words with sweet and pretty backgrounds. So happy to be part of this project!
So we talked a lot. About everything. He convinced me I'm completely normal. He also complimented me on coming to him asking for help. So he's going to search for a psychologist for me... According to him there needs to be a certain chemistry between a patient and a pshych so he's going to try and find me a good match.
Tamoxifen also came up. But since I'm not feeling so great right now... and Tamoxifen has like a billion side effects and depression is one of them. My onc decided he wants me to see a psych first and feel better. Which is quite a relieve actually. I have enough on my plate for now. The results from the blood test showed that I haven't hit menopause yet... but it's coming close.
In the meantime I'm working very hard on the being the in now and not thinking about my next Herceptin treatment. One word: DISTRACTION. I sand and paint old furniture, I draw, make cards, send out packages, take photos, I take walks, hug the bunnies, I bought a record player... that sort of things.
Today I had my first walk outside without my hat. My hair is still really short but it's too hot for a hat right now. I think it'll look better in one or two months. Maybe I can even dye it by then and get rid off the grey hairs.
I also donated 50 of my photos for Ann Marie's Bravery Bags. She's making bags filled with goodies to lift spirits of those fighting the C - battle as well. My photos feature strong and inspiring words with sweet and pretty backgrounds. So happy to be part of this project!
July 23, 2013
As much truth as one can bear
That is actually the title of an album by one of my favourite singers yet to be released. However it seems fitting for this post.
Life after chemo has been hard on me. With a sad face I want to pout, 'Herceptin isn't anything like they promised it would be. You liars, it reminds me way too much of chemo.'
I know I always described chemo as my black hole. The darkest, coldest, loneliest place on earth. But this weekend I think I hit rock bottom. It was freakin' hot and sweaty with lots of salty tears.
I have been feeling so sad for the last couple of months. My heart aches. I am nervous about everything. Everything. I seriously do not have any control over my nerves any more. I don't enjoy the things I used to. I'm so sad about everything that has happened to me. So scared about everything that is still coming up, the Herceptin I won't finish until January 2014. I see bears on the road everywhere. I'm done. It's been over a year and I'm done. I could not make it one step further.
So there I stood... in the middle of the room with my hands clinging to the dining table. Crying uncontrollably and screaming out loud I was going crazy. With my dad on my right side and my mum on my left side. Holding me.
I broke.
So it's time. To reach out. I realized I can't do this all by myself any more.
So we called my oncologist and his secretary forwarded my appointment to next week. I am going to tell him how I feel and that I'm ready to see a psychologist.
Yes. I finally made my decision and I realize that I won't be healed in a week or forgotten everything after a year. No this will be my bagage for the rest of my life. So I better make sure I give it a nice place. A little corner. Because I deserve that.
Life after chemo has been hard on me. With a sad face I want to pout, 'Herceptin isn't anything like they promised it would be. You liars, it reminds me way too much of chemo.'
I know I always described chemo as my black hole. The darkest, coldest, loneliest place on earth. But this weekend I think I hit rock bottom. It was freakin' hot and sweaty with lots of salty tears.
I have been feeling so sad for the last couple of months. My heart aches. I am nervous about everything. Everything. I seriously do not have any control over my nerves any more. I don't enjoy the things I used to. I'm so sad about everything that has happened to me. So scared about everything that is still coming up, the Herceptin I won't finish until January 2014. I see bears on the road everywhere. I'm done. It's been over a year and I'm done. I could not make it one step further.
So there I stood... in the middle of the room with my hands clinging to the dining table. Crying uncontrollably and screaming out loud I was going crazy. With my dad on my right side and my mum on my left side. Holding me.
I broke.
So it's time. To reach out. I realized I can't do this all by myself any more.
So we called my oncologist and his secretary forwarded my appointment to next week. I am going to tell him how I feel and that I'm ready to see a psychologist.
Advice is like snow - the softer it falls, the longer it dwells upon, and the deeper in sinks into the mind.
Yes. I finally made my decision and I realize that I won't be healed in a week or forgotten everything after a year. No this will be my bagage for the rest of my life. So I better make sure I give it a nice place. A little corner. Because I deserve that.
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